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I think most people have heard of this common idiom; if you haven’t here’s a link that will explain it to you: 
I have always loved using idioms.  For myself, an idiom has been a special way of expressing something I’m feeling and at times the best way of explaining a situation in more visual way.   For example “the early bird gets the worm.”  It explains that you can easily get ahead  by being punctual and dependable.  Another one I really like is “It takes two to tango,” meaning  both people involved in a bad situation are responsible for it.
So today I came across a situation that I had once pursued but quickly gave up on.  That is when I started thinking about the idiom “beating a dead horse.”  It sound like a terrible thing to think of, but when you consider what it means it does make sense.  It has nothing to do with beating someone or a dead horse or any other animal for that matter.  What I take from this idiom is why try to fix something that can’t be fixed or why keep asking if the answer is always going to be the same  For the most part, I believe it’s true that you shouldn’t keep bringing about an issue that has already been solved or concluded, but that was until I realized how what I was dealing with was really not concluded.   I understand why I assumed it was.  Any health issue I’ve had in the past decade hasn’t come with a cure or the cure for most didn’t work on me.  I was always hearing that I needed to learn to live with it.  Hearing that so much has made it where I stopped pursuing any treatments that  may or may not  help.

Now to explain what happened today I have to start from the beginning.
So, about 5 or more years ago I had seen a doctor about some excessive facial sweating I had experienced.   I would literally be dripping of sweat with barely moving much .  Even in the dead of winter with below freezing temperatures, if I would walking up and down stairs or scrubbing the counter or the bathtub, I would sweat profusely.  At the time I thought maybe I was going through “the change” a little earlier than most or that I had some other medical issue that was causing it.   So I went to see my family doctor and she ordered some blood work to be done on me.   A few days later I received a call from her office and was told my blood work looked good and that they didn’t find anything abnormal.   I know I probably should have pushed for a reason, but I dropped it and haven’t brought it up since then.
I think I can why I chose to handle it that way.   I had already felt as though physically I was somewhat backwards long before that day.  Once when a doctor was doing a test where they would touch the nerves in my back and I had to tell them where I felt it at, I was told that the sensations I was getting on my left side should have been felt on my right side and vice versa.  I had other situations such as that and so it hit me that I was just backwards and far from normal.   I eventually accepted that I’m not normal and even take pride in that at times.
Until recently, I was content with using that reasoning and just dealing with it,  but for the past several years the sweating was getting  worse.  It started affecting where I would go and what I would do when other people would be around.   I knew that I really couldn’t be outside in warm weather without immediately breaking a sweat and it was so obvious of what was happening.  The only way I could hide it is if I was at a lake or by a swimming pool.  It was a much harder situation to explain when it was cold.  If  starting moving around, even in freezing weather, I still would break a sweat.   My hair would get sopping wet and it’s embarrassing.  These days I’d rather sit at home then go anywhere.   I’m tired of feeling that way.  I think that is why I decided to search that symptom on the internet.




I just about to “whoop it up.”  (Sorry had to throw that idiom in too: get excited with a party-like feel.)  Seriously though, I felt I couldn’t believe it was really possible to finally get an answer to one of my many health issues and in reality there’s no guarantee I even have.  I will find out soon though.   After I realized there’s a name for what I might have (Hyperhidrosis) and that there’s medication for it I called my neurologist and have an appointment tomorrow.    So wish me luck please, if this can fixed it will make a big difference in my life.



confidentI just updated my “home” page and wasn’t sure if anyone would be informed about the changes.

I hope everyone finds it to be something they enjoy.


a lil rainThis morning  I realized how much hurt I had let get buried deep inside myself.  To be honest I don’t have anyone in my life that I feel comfortable opening up  to and I know that is no ones fault but my own.

I was the one who let myself shut down.

I started building walls all around me.  At that time, I don’t believe I realized what I was doing, but I can understand why I did that.  I was hurt deeply by the people I was supposed to be able to trust the most.  Somehow I had to find a way to survive especially for my kids.  They needed a parent to take care of them that they didn’t have to fear.  I had to do anything I could to  protect my heart.   It was, after all,  already severely broken and I didn’t feel that it would be able to take much more.  So what did I do?   I started to avoid people, even those I loved.  I was still friendly to anyone and everyone I’d come across, but I always kept them at arm’s length so they couldn’t get close to me.  Then I stopped going places that I had once enjoyed but the worse was when I started going out of the house only when I absolutely had to.   I had become a hermit and the only one who could fix it was me.

I feel there is only one way I am going to ever truly heal.   First I need to knock down all the walls I had built so high.  Once done, I need to open up some of the old wound so I can let them drain and heal properly.  The only way I think I can successfully do that is if I start opening up about the past, write about my experiences, how they made me feel and any lesson that I learned from them.  I need to learn to stop always being the caretaker and realize it’s okay to let others  take care of  me.   I think that will end up being the hardest part, but I know that it’s something I have to learn to do and the sooner the better.

To start the healing process I need to try to train myself to take the time to post updates on this blog .  I’m not quite sure where I’m going to start, but using an “In the beginning” format probably wouldn’t work for me, it’s going to be what I’m feeling when I’m feeling it.

I just want to say thank you to anyone who is reading this now and/or any future updates I post.  Just knowing someone took that time to hear me out makes a world of a difference.



Several weeks ago I had the EMG/NCV of my legs and I pretty much got the answer I was expecting.  The test showed absolutely nothing.  SURPRISE, SURPRISE…..yeah right!  The thing that I wasn’t expecting was what the Dr. told me next.  He said that even though it’s rare for the test to show a false negative result for nerve damage, it can happen.  I don’t know if you can imagine how that felt.


That’s right, relief.  I found a Dr. who not only believes me, but understands also.

Wow, more than one those do exist!

and to finally hear the words

“I believe you!” 

it’s not something that someone like me who has had the issues I have hears very often and I can’t even express how much I needed that.  

Usually I get a negative reaction or a feeling of there’s nothing they can do for me and I was ready to give up on ever feeling better, but Dr. Wagner changed that for me.  It actually gave me the feeling that I don’t need anyone else to validate the symptoms or even give me a cause for them.  

For that reason I don’t know how much more time I’m going to invest in getting a diagnosis.  I think that knowing that someone believes me is enough and I’d rather just focus on controlling the symptoms.  I don’t have that need to prove anything anymore and that is such a great feeling.

A little over a week ago I had a 4-5 left-sided trigger point SI injections shots in my back.  That was the most painful injection I’ve ever have had.  The Dr. thinks the hip pain I’ve been having has to do with my Sciatic Nerve so I had to suck it up and get it done.   I just wanted to be able to  move without having to worry about randomly screaming my lungs out and scaring anyone who happened to be around me.  Although I still have some of the pain, that goal seems to have been accomplished.  I’m thinking that I may need to have the injection repeated.  I know that it can take a few injections before you get the full affect.  At least that’s have it was with the Caudal injections.

This has really been a busy month.  Just a week ago I  had another EMG/NCS, but this time of my arms/hands.  Dr. Wagner wanted to repeat it since it was back in 2009 when I last had my them tested.  That brings back memories of how this numbness/pain started. It was the morning after Thanksgiving  and I woke up in the middle of the night with the worse hand pain I could ever imagine.  I was out-of-town at the time and  I didn’t want to be a bother to anyone.  I also don’t like emergency rooms.  I decided to just grin & bear it.  From that moment on, little by little, numbness became a part of my everyday life.

Even though the numbness started in my hands I wasn’t having any numbness  in that area the day of the test.  I even thought to myself how funny would it be if that test actually showed something.  What do you know….. it did!  I guess I have mild to moderate Carpal Tunnel in both hands.  Honestly I just think I’m backwards and you know what?

I’m okay with that!

I think that actually makes me kind of special:)

So now I  have to decide whether to have that nerve biopsy or not.  I’m a little scared to have one done because of what I’ve read about it.  From what I understand the nerve is exposed and carefully divided into its many fascicles. Each fascicle is tested electrically during surgery to determine if it carries motor or sensory function, it then is covered with an occlusive dressing which is removed after 3 days, revealing some stickers underneath. These stickers are left in place until you see your surgeon about one week later for a wound check. My biggest concern is there could permanent nerve damage as a result of having this test, but it may be necessary if the numbness I’m having keeps spreading.   This may sound funny and is very annoying, but lately I can be bare footed, but the numbness that has spread from my feet up into my legs makes me feel as though I’m actually wearing boots.  Even when I do have shoes on, it won’t matter how straight my socks are on or if not a speck of dust is in my shoes, it feels like somethings not right such as my socks are scrunched up or rocks are spread throughout the entire shoe.   So you probably can imagine why I only wear shoes on as a need to basis.

I hate to admit it, but I think I need to put my pride aside and start looking for a walker.  Recently I had to use my old one since I couldn’t walk the distance I needed to without something holding me up, but I was embarrassed by how people looked at me with pity.   The thing is I need to start accepting the fact that it is going to get worse. Eventually I’m going to be almost completely hunched over.  I have what is called flatback syndrome due to failed back surgery.  Right now the surgery to repair it only has a  47% success rate and I don’t like it when the odds of ending up worse is greater than the odds of getting better. Not even worth it, doing fine getting worse on my own. Still can’t believe that fixing my scoliosis caused me to have a spine that is now too straight.   The fact is I’m so straight, I’m falling over, lol.  I am looking forward to getting a scooter one day.  I already made plans to race the kids!

Well, that is all for now.  All I can do is take one day at a time and I will and get through each one, just like I always have.


Since November I’ve had constant numbness in the bottom of my right foot. Then a few months ago I noticed numbness in the middle of my left foot going from my toe down to my heel and eventually the entire bottom of my left foot has also become constantly numb. A few weeks ago I finally saw a neurologist and Monday I’m scheduled to have an EMG.

Today as I was thinking about the test I started having a panic attack. Not because I’m afraid of the pain or what the test may show, I can deal with that. What I’m afraid of is once again getting told I have something that can’t either be explained or fixed (i.e. Fibromyalgia, CFS, etc.).

That got me thinking about what I’ve already been through, especially when I was first diagnosed with Fibromyalgia.
Being diagnosed with Fibromyalgia was very hard for me to accept. For one, at that time I had never heard of it and even worse some medical professional labeled it a “made up disease” or called it a “mental” disorder, but


So at first I dismissed it and thought “they probably just haven’t figured out the real cause of my pain.” Even as time went by and I would have other symptoms I would be told that it’s part of the fibromyalgia or even worse; being diagnosed with something else like CF(Chronic Fatigue Syndrome), I still didn’t believe it. For one thing:


Then I started researching it more and the more I research it the more I finally understood and even believed that actually was what I had. I was so happy. Not because I had Fibromyalgia and CFS, but that I finally could put a name to what was going on with me. I was on cloud nine, but right as I thought everything would be easy to explain to now, I was hit with a whammy that was even worse.

What could be worse than some doctors as well as myself questioning what I had?

Others questioning it too, especially those who were supposed to be the closest to me. And I know it shouldn’t matter what others thought, but in reality

And even to this day, shamefully

Lately, I think I have new and even a better attitude about it, especially since the past year has brought new and more alarming symptoms. I’ve realized that I can’t worry as much about what others think and if they don’t believe me, well…… then they don’t need to be part of my life. Just like the doctors can’t do anything to fix my pain, I also can’t fix another persons stupidity, so if they want to call it a made up disease…. I will speak my mind and it might even hurt my feelings a bit but more than anything…… I will really pity their ignorance.

Most importantly though is what I have learned and what I do know about myself and that is how strong I really am. Living with chronic pain is not easy, but even so I get up and do the most I can when I can. Sometimes I do more in one day than a healthy person does in one week. I can’t choose what days those are, but when I have a good day I do take advantage of that and for that reason


Anyway, Monday will be here before I know it and I could leave the doctor’s office that day with either some answers or more questions. Either way, I will get through it. I think I’ve proven that.

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